Sarah Angelini

Monday morning I have an appointment with a neurosurgeon who specializes in Chiari at the Children's hospital. I don't have any expectations at all. People often ask me if I'm in pain/having a good day. I always try to have a happy response because I don't want to go around depressing people (that's what here is for..ha) Everyday I'm in pain, constantly and pretty much without any sort of relief. I choose to have a positive attitude and pretend like I'm okay. I've been in pain for almost 2 years, I think my body is just getting used to it. Some days I can't pretend because the pain is more intense than normal, days like today, so I stay home and lounge around hoping to feel better. I don't go around complaining and saying how bad I feel, so people assume that I'm fine, but I'm really really not. I just want my life back! I can only hope the day will come when someone will ask me how I am and my response will be an honest okay.